http://www.rareshare.org
RareShare was founded in early 2008 on the idea that there is a better way to bring together patients, families and healthcare professionals to share knowledge and personal experiences about rare medical disorders and disabilities.
While rare disorders and disabilities may seem to impact only a small portion of the population, together they affect over 30 million individuals in the United States and Europe alone.
Due to the comparably low level of occurrences of individual rare disorders, there is often a lack of information and support for patients and their families. Our communities are designed for people to share experiences, explore treatment options and find support among others affected by the same disorders.
Here is rareshare's Mission :
"We are dedicated to building international online communities designed to increase the level of communication and support among patients, families and healthcare professionals affected by rare disorders."
"It's free and easy to join RareShare. Here are just a few of the reasons to sign up for an account:
- Communicate with others that are affected by the same disorder
- Contribute new information and personal experiences to your disorder community
- Find additional resources specific to your disorder"
http://www.rareshare.org
